Bringing Stories to the ICU
One of our current projects, funded by the Cambia Health Foundation Sojourns Scholar Leadership Award, is integrating the 3-Act Model (see above) in the Medical ICU at Hopkins Bayview. We are collaborating closely with leaders and team members in the ICU to integrate artful communication and systems change with the aim of improving person-centered care and systems outcomes.
Palliative Interprofessional Collaborative for Action Research (PICAR)
The PICAR team consists of Rebecca Wright, PhD,BSc (Hons), Danetta Sloan, PhD, Janiece Taylor, PhD, and David Wu, MD.
We are grateful to partner with researchers at the Johns Hopkins School of Nursing and Bloomberg School of Public Health in doing important work at the intersection of palliative care and social justice. Together, we are aiming to better incorporate the voices of our patients and families and communities, in all their diversity, in the care of those with serious illness using participatory / collaborative / co-design approaches. Our conceptual framework is described in this publication, “A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.”
One project we are working on, funded by the Hillman Foundation, is entitled: “A nurse-led approach to improving palliative care in the ICU for Black populations.” Rebecca Wright, PhD, BSc (Hons), is the principal investigator for the project, and co-investigators include Danetta Sloan, PhD, and David Wu, MD.
Another project, funded by the Johns Hopkins Institute for Excellence in Education, is “Partnering with community members to design culturally sensitive goals of care communication training.” David Wu is the principal investigator, and co-investigators include Drs. Wright and Sloan, Drs. Chapla and Orozco from our Division, and several incredibly talented Medicine residents, Drs. Ekene Ojukwu, Amarpreet Ahluwalia, and Kamini Kuchinad.
Our Team’s Recent Publications
Clinical excellence in palliative care. (Wu, Wright) Am J Hosp Palliat Med.
Primary palliative care education for trainees in US medical residencies and fellowships: a scoping review. [published online July 8, 2020]. (Paulsen, Wu, Mehta) J Palliat Med.
Covid-19-pandemic-response-development-of-outpatient-palliative-care toolkit based on narrative communication. (Roberts, Wright, Christmas, Robertson, Wu) Am J Hosp Palliat Med. 2020.
Hopes and Future Directions
Building on our success to date, in 5 years we aim to:
- have artful palliative care thoughtfully integrated throughout the hospital AND the community;
- have a robust interprofessional research program pursuing health equity in palliative care;
- keep growing, thriving, and bringing peace.